Honestly I am not sure how to even start explaining my past year...
It has been an hellish year if I'm honest. Last February I was fighting with a sinus infection that never seemed to fully get better, looking forward to a family summer holiday in June, thinking it was just what my body and soul needed. June came around quickly and off we went on the much needed holiday in the sun, although I felt better, I still did not feel quite right and spent a lot of precious time lying in bed with the air condition cooling the room, unable to drown out the noise from the daily pool activities that seem to go on for hours. The day before we were due to fly home I felt so unwell that I had to go see the hotel doctor, as I was in tremendous pain and had an awful feeling something was really wrong, prescribed numerous medication for a urinary tract infection.
From August, right up until December last year, I was at the Doctor every three weeks, as I was dropping weight, I was constipated, I had no appetite, I was falling asleep, I was literally falling. Four months of me begging them to see how poorly I was feeling, four months of being prescribed laxatives and anti-depressants(he believed I was menopausal depressed) that was the answer I was given when trying to explain these worsening cognitive issues, and how I was concerned that something serious was being overlooked. Finally when I was at the point of complaining to the practice manager about the care I was receiving, I had an appointment with a locum GP, who sympathised with my feelings regarding not being listened to and felt that tests should have been carried out before then. Blood and stool samples came back as inflamed and I was referred to gastrointestinal, I'm still waiting to hear about an appointment.
The lovely locum also referred me back to neurology, as the falls(drop attacks) were still frequent. Professor Stone specialises in FND Functional Neurological Disorders, we spoke at length about my symptoms and he has referred me onto other departments, to try and get on top of these symptoms. Spine and brain scans are also requested, with the wait time estimated by him at around 6 months.
So I'm here now, in the meantime, still being my own super hero, still trying find a way to live well. In that quest I try many therapies and yesterday I had a Somatic Therapy session, I'm taking a few days to see how I feel, be aware of how my body responds. Already though I feel some kind of shift that I can't really explain, as I'm not sure myself yet what it is, but I'm here writing, after a year of not being, I'm here
